October 3rd, 2009! I am 1!

Mommy and Daddy through me the best birthday party ever!! We had all of our family and friends come over and we all ate pizza and cupcakes! I got some awesome presents that I love to play with! So thanks to everyone who came and for everyone who sent cards and presents!! It was the best 1st birthday party!!

So tomorrow mommy and daddy are taking me to the hospital, and we have to stay there for 4 days! I am starting the Ketogenic Diet and I have to go through a 36 hour fasting period in order for my body to reach a level of ketosis which helps kids control and sometimes rid of their seizures! We are all really afraid, but we are in good hands at children's hospital and mommy has met so many families that have had amazing results from the diet. So please take a little time out of your day sometime this week to say a prayer for me and my family! Mommy will keep the blog updated as we go along this process! Thanks for reading my blog! xoxo

I am almost 1!

It has been a long time since mommy has updated my blog! We have had a really busy summer trying to enjoy the weather but to also stay on top of my seizures! So mommy and daddy have been working with my doctors on a plan of attack for my treatment. Mommy has been going crazy researching all sorts of different medical treatments, but after all is said and done, they are starting me on a diet called the ketogenic diet. It is basically a really high fat diet that helps the body reach a state of ketosis which doctors are not still sure why, but it helps stop seizures. So I am going to be put on the diet on October 4th! Mommy and Daddy are so happy I will be able to eat cake and ice cream for my 1st birthday now!! There is a story in the old testament that tells the story of a child with epilepsy and they put him through a fasting period and his epilepsy was cured! So please everyone say a little prayer for me and mommy will post pictures from my 1st birthday party when its over!! xoxo

Lots of News!!

There has been so much going on in out household it has been pretty much impossible for mommy to update! (which we are so sorry about the delay) I have been having a great summer! I love to go to the pool, mommy and daddy took me for my first time over the fourth of July! I love the water! We also got to go to Canada where I got to go on my first plane ride and get a stamp in my passport! We had so much fun seeing Tata and Papa and everyone up in Calgary! I now weigh over 14 lbs and I am over 2 ft tall! Not even my pediatrician believes how well I am doing! I am surprising everyone with how much I am improving and growing! I started a new medication for my infantile spasms and seizures call Vigabatrin, which is working amazingly and I have not been able to stop making all sorts of noises! I love to mimic anyone who talks to me! Because of the medication we are monitored every week at Children's Hospital and we have to be admitted next week for a 24 hour EEG! So please cross your fingers and say a prayer for us because spending the night or 2 or 3 at the hospital is always trying on all of us! Today marks my 10 month old birthday and I am doing and feeling better then ever! Thank you for following the blog and I love you all very much!! xoxoxo