Kingsley's 1st Thanksgiving!!

So much has happened to me this week!! Mommy and Tata took me on my first trip to the mall! Mommy was getting all sorts of goodies for Thanksgiving since we had 10 people over to our house! It was sooooo much fun! I sat on Mommy's lap the whole dinner and her and auntie Skye kept trying to feed me sweet potatoes! I have gained some weight too, I am now 6 lbs 5oz. I also got to meet my other "aunt" Hope. She came in from LA to visit and I love her so much!! Daddy and Mommy also took me back to the mall just so I could sit on Santa's knee! I just asked Santa to pray for me because I have another EEG on December 3rd. So everyone who reads this please think of me on that day and take an extra minute for a small prayer! We are hoping to see more activity in my brain patterns! I am looking forward to Christmas, Mommy and Daddy are taking me to get a real Christmas tree! I will keep everyone informed as to what goes on next week!! xoxo

Finally another Update!!

Today is my 2month birthday!! Yay for me! I officially hit the 6 lb mark when they weighed me at my cardiologist appointment. Last week I had a neurology appt and everyone is so surprised and ecstatic by my progress!!! I am scheduled for another EEG (for my brain patterns) on Dec. 3rd, so please say a prayer! Today was cardiology and I have an innocent murmur which means its nothing to worry about! I do however have an Artial Septal Defect, which might be able to close on its own in time, but is fixable in the future if needed! So nothing too serious, which is great news. Especially because Mommy and Daddy were almost the ones with heart problems today due to all the stress they are going through! I really am a miracle baby. The Metabolic team had Mommy and Daddy sign a release form to let me be a research baby because we still don't really know what is going on. But I am eating way over my minimums and growing like a weed! Tomorrow I get all my vaccinations, so Daddy and Mommy are dosing me up with infant Tylenol so I won't be THAT upset or uncomfortable!! But thank you to everyone who reads my blog (Gail in Tucson and Tracey in Chicago) and everyone else!!! I will keep you updated soon!!! xoxo

Today was a very stressful day! I had a visit from Lisa, my Occupational therapist and got new splints for my hands! Then Daddy and Mommy took me back to Children's Hospital to meet Dr. Gallagher my metabolic doctor. They are using me as a research baby because they are not sure as to what is going on. So I had to do another blood draw which I really don't like at all!! But we eventually got through it and now I am home sleeping! I have an EEG next week so I will keep everyone informed on my progress! xoxo

Today is Election Day! My very first election, how exciting! I am doing great! Mommy and Daddy bought me a baby scale and I weigh 5 lbs 10 oz today! It won't be long before I hit 6 lbs! My physical therapist taught daddy and mommy how to do baby massage and boy it feels soooo good!! I am eating so much more then expected which is making mommy and daddy less stressed! I have a big day tomorrow (Wednesday, November 5th) because I have occupational therapy and then a metabolic appointment back at Children's Hospital where I might have to give more blood, but that's nothing compared to the 5 spinal taps I had in the past. As long as we are getting closer to answers, Mommy and Daddy are up for anything. I am told I am the best baby, I hardly cry and I am really cute! I would love to have visitors anytime, so if you are reading this blog, try to make a trip to Denver! Thanks for your support and I love all of you!! xoxo