New Casting on My Hands!!!

I know its been way overdue for mommy to inform everyone on my condition, but here we go!!! I finally got a bright green cast put on my right hand today to start the process of getting my thumbs straight! I was such a good boy, I slept on Daddy's lap through the whole thing! I only wear it for a week, then we do the left hand! I am doing so well off of my feeding tube, and I am now over 8 LBS!!! I am having a swallow study done on Monday (just to make sure my milk isn't getting into my lungs) and then we have to spend the night at Children's Hospital on Wednesday so they can do a probe study down into my stomach to see about my reflux!! So we have a busy couple of weeks ahead, but as soon as we get results we will share with everyone! xoxo

Home from the Hospital (yet again)

I am finally home from the hospital yet again! I started having "spells" last week that were very alarming to mommy and daddy so they took me to the emergency room last Wednesday and I ended up staying in the hospital until Sunday! It turns out I am suffering from a severe case of epilepsy and I have infantile spasms to boot! The diagnosis is unknown, but mommy and daddy aren't letting that bring them down. I am now on a feeding tube (this springs "must have" accessory) which is helping me with my caloric intake. I have been put on a different seizure medication so we are all just waiting to see if that is going to help with my spasms. Its been a long week and mommy and daddy are going on no sleep, but we all will get through this. Please say a prayer for me as often as you can and I will keep everyone updated on my progress! xoxo