Mommy has been really lazy and not updating my blog for me!! I have been doing so good, actually, better then good, so we all have been just trying to live our lives and enjoy every moment away from the hospital! We are going on 6 months of being hospital stay free, which is a record of my lifetime! I am now rolling over, from front to back AND back to front... So mommy thinks I am a handful! Mommy won't let the doctors run unnecessary tests on me which has led to a lot of DRAMA at the hospital, but I know mommy and daddy are my number one advocates and obviously want the best for me!! Sometimes doctors don't understand the term "Quality of Life". They focus on testing, testing, testing.... So I am doing great, I am back on my regular G-tube feeds and I LOVE to suck on grape popsicles and Fun Dip! (Probably not approved by the medical team, but mommy approved)! I am getting Botox treatments injected into my pectoral muscles and my thumbs to loosen them up and hopefully it will help my posture. I am also going to start wearing a back brace to straigten out my spine... None of this hurts me, it is just cosmetic help. Mommy wishes the doctors would give her my Botox, but its not happening! LOL! I will keep everyone posted on my progress, but so far year 2011 has been a great year for me and I am planning on keeping that way! xoxo Thank you for reading my blog!
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