I am finally home from the hospital yet again! I started having "spells" last week that were very alarming to mommy and daddy so they took me to the emergency room last Wednesday and I ended up staying in the hospital until Sunday! It turns out I am suffering from a severe case of epilepsy and I have infantile spasms to boot! The diagnosis is unknown, but mommy and daddy aren't letting that bring them down. I am now on a feeding tube (this springs "must have" accessory) which is helping me with my caloric intake. I have been put on a different seizure medication so we are all just waiting to see if that is going to help with my spasms. Its been a long week and mommy and daddy are going on no sleep, but we all will get through this. Please say a prayer for me as often as you can and I will keep everyone updated on my progress! xoxo
This is a Blog all about me, Kinglsey James Larsen! I was born on September 17th, 2008 at 5:29pm with epilepsy and I want to share my experience in here with you!
Wednesday, February 4, 2009
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Laugh Factory!
Untitled from Summer Larsen on Vimeo.
Costume from Auntie Skye!
Pool time!
Mommy and Me!!
Rockin' Out
Tata at Mall
Cutie Pie
Auntie Skye and Jaxon
4 Generations!
Carseat
Sleepy Time
Tired from my Day of Tests
Kingsley's poem
New little babies gifts from above
sent to you with so much love!
Swaddle them close Wrap 'em up tight
they feel secure never out of your sight!
Strong and brave that's how they grow
knowing your love will always show!
The parallel here is for you and me
to stop and realize what we see!
All of us are babies sent from above
we are wrapped in the blanket
we know as God's Love!
Hello World!
More of Me!
Chillin' out
Kingsley Ringing Bell from Summer Larsen on Vimeo.
3 comments:
I hope everything goes well, and you'll be in our prayers.
I saw Zac walking through the lobby and wondered if Kingsley was in the hospital. I am glad you all are home and I hope all is going well. I love all the pictures of you guys at home. You all look like you are doing well and enjoying the cute little bundle.
NICU Nurse Ann
Ty and I love you all so very much and are sending so much strength and support to all of you!! We would love to bring dinner and perhaps a movie over to share a nice relaxing evening with the 4 of you, Rex included =). You let us know how all of you are doing and please feel free to get in touch with me via Ty or you can Facebook me, Alejandrina Quintana. xoxo
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